Mom, author, nurse, teacher . . . reading the world around me

Month: August 2016

Picture Books that Get The Big Picture

As an author, a mom to a special needs son and a pediatric nurse, I am always on the lookout for books portray a realistic representation of the American demographic. We are not all “the same” and that is one of our country’s greatest strengths. One underrepresented group of kids that I’m particularly sensitive to are kids with ‘disabilities’ that make them look or act different from other kids. Here are some picture books for very young children that can begin to introduce characters with special needs in a positive light.

  1. Keeping Up With Roo by Sharlee GlennRoo cover

    I will admit that this book hits close to home. My older sister Mary Beth was always so excited to be an aunt. But each of her nieces and nephews, as they grew older, came to realize that she was different than other adults. This is what happens to the main character Gracie in this story when she starts school. When Gracie brings her friend Sarah home from school, she feels embarrassed about Roo’s behavior. Like all children who have a family member who is “different”, Gracie has to comes to to terms with her aunt’s differences and realize what is really important in life.

     

  2.  Susan Laughs by Jean Willis

    I love the fact that this picture book focuses on all of the things the main character images (1)Susan does that are exactly like every other kid in the world. It isn’t until the very last page of the book that the reader will discover that Susan is in a wheelchair. I took care of a beautiful, smart and sassy little girl who uses a wheelchair and I see her on every page. I highly recommend this book to parents of preschoolers. When you reach the end of the book, the illustration of Susan in her wheelchair provides the perfect teachable moment to discuss all of the similarities Susan has with your own child.

 

3. My Brother Sammy Is Special by Becky Edwards
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I love the way this book explores the complex sibling relationship that occurs when one of the sibling’s has special needs. Generally that sibling is parented differently, with a different set of rules and expectations. The author allows Sammy’s brother to express his resentment and frustration, but ultimately focuses on his love and concern for his brother. This book would be the perfect gift for any child with a special needs sibling.

4. Just Because by Rebecca Elliott

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What I love most about this book is that the younger brother Toby is too young to understand exactly why his big sister Clemmie can’t do the things that other kids can–but he doesn’t need to. In his innocent and accepting heart, he just loves her like she is. The author depicts the positive things these siblings can do together, even if it isn’t what most siblings can do. The writing is beautiful and the illustrations are enchanting. Children with siblings like Clemmie are going to be faced with many challenges as time goes on, but this book’s purpose isn’t to tackle the hard stuff. It’s to focus on the love and affection that is at the heart of the sibling relationship. And it does it beautifully.

5. A Friend Like Simon by Kate Gaynor51OijiofOVL._SX402_BO1,204,203,200_

This book doesn’t focus on the sibling relationship, but on the struggles kids on the autism spectrum have making friends at school. I love this book. I see so much of my own son in the character of Simon. This story is told from the perspective of a kid who is trying to be Simon’s friend at school. But it isn’t always easy. It takes more time and effort to get to know kids who are on the spectrum, but this book shows that it can often be well worth the effort. As a mom of a “Simon” myself, I appreciate the kids who make the effort.

6. The Invisible Boy by Trudy Ludwig

51j3FlqSA9LFor any parent of a quiet child that’s felt left out of the “popular group” at school, this book is a true find. The illustrations by Patrice Barton add to the impact of the words because Brian (the invisible boy) starts out gray and becomes more colorful as he begins to see himself as fitting in with someone–anyone. This book truly shows that it only takes ONE kind child to reach out to an “invisible kid” and make them feel a part of a class. Parents, I urge you to teach your children to be this one child. There are “Brians” out there in every classroom. I’ve taught elementary school, and I’ve witnessed the change one child can make.

 

This list is certainly not inclusive of all the excellent books out there. However, these 5 titles resonated with me in a special way. If you have other books to recommend, please comment and let me know about them. I’d love to hear from you!

**Please note that I am not the copyright holder for any of these books, and am using the cover images to aid in readers locating the books at their local stores or libraries. 

 

The Rest of the Story

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A few weeks ago, our pastor asked me to share a story or memory about my sister during her memorial service. I managed to pull myself together enough to share a story that took place at my grandfather’s funeral many years earlier. I’ve had people ask me about it, and share with me how much they enjoyed the story. So, in the words of Paul Harvey (who happened to be one of my grandfather’s favorites) here is “the rest of the story”.

September 12, 1981 was the day my childhood abruptly ended. It began as an almost idyllic Autumn Saturday. My mom had taken us to Stone Mountain Park for the Yellow Daisy Festival, and we had spent the morning browsing through rows of handmade crafts and funnel cakes.

When we got back to the house, my mom dropped us off the swim while she went grocery shopping. I was thirteen years old that day, but by the time the sun went down I felt about sixty. The sibling dynamic in my family had always been skewed because my older sister had been born two months early, leaving her with disabilities. I functioned as the oldest sibling, even though it was never acknowledged formally. On this fateful day, my sister Mary Beth had decided to stay inside while my younger brother and I swam. After about thirty minutes of enjoying our typical pool antics—cannon balls from the side, diving for rings, contests for holding one’s breath underwater, etc.—my sister appeared at the back door looking as if she’d seen a ghost.

“Some lady just called,” she announced in an unrecognizable tone, “and said that she’d ‘heard in passing’ that Grandpa died.” She looked as if she’d seen a ghost.

I swam to the side of the pool. “Grandpa Callaway?”

She swallowed hard, still pale and shell-shocked. “No. She said it was Grandpa Walter.” But this simply couldn’t be possible. My grandpa was a doctor who still saw patients every day. He was full of life. I’d spend the weekend before with them in the mountains and he’d been perfectly fine.

I was out of the pool and to the door within seconds. I didn’t even bother to completely dry off before rushing to the phone hanging on the wall of the kitchen. I punched in the numbers to my grandparent’s rambling old farmhouse in the mountains from memory. As the phone rang, I tried to think of a reason for calling. I surely couldn’t explain to Grandpa the real reason for my call.  But he didn’t answer the phone that day and neither did my grandmother. At that moment, I just knew. The woman on the phone had been right. With my mom gone, I had to become the adult and hold things together until she got home and could find out what had happened. Once you take on the role of adult, there’s no going back to the innocence of childhood. I discovered this on that day.

The funeral was held at the church my grandparents had attended for years-a white frame building constructed in the early 1900s. It was traditional in every sense of the word. The day of the funeral, the place was packed. People stood along the sides and the back of the sanctuary, and people even stretched out the doors into the churchyard. After all, Doc Walter had treated most everyone in the valley at one time or another, having been the only doctor around for miles. People came out in droves to pay their last respects to the Doc.

My sister, Mary Beth, taped her favorite television programs years before anyone had ever thought to make VCRs. Armed with a Kmart cassette tape recorder, my sister would record an hour long program—the first half on side one of the cassette tape, and the rest of the show on side two. Of course, this meant you couldn’t talk, cough, or clear your throat during the entire program without suffering her withering stare and flapping hands to silence you. But come hell or high water, those shows were going to be taped. Mary Beth also traveled everywhere with her trusty tape recorder. So it was no surprise to anyone who knew her that she had it clutched in her arms when we walked into the church for the funeral.

Mary Beth had decided that we needed to record the funeral-partly because my grandmother was too distraught to attend. This task was delegated to my father—a man who has the biggest heart and the best of intentions, but doesn’t handle stress all that well. He scurried around through the packed room and placed the Kmart recorder on the top of the organ. He asked the organist, who was rather elderly, if she would please be kind enough to push the “record” button and the “play” button down when the service began. She nodded her agreement as she pounded out the hymns that the family had requested be played.

Everything seemed to be going according to plan until the organist reached up and hit the “play” button only—just as the family had been seated. Mary Beth had placed the cassette in the recorder on the “B” side, which contained the second half of a Little House on the Prairie episode that she’d previously recorded. She must have really wanted to have a recording of Grandpa’s funeral pretty badly if she was willing to tape over that show—it was her absolute favorite.

When the blood curdling screaming started , no one else in the church knew what was happening. They simply looked around the church, bewildered by the terrified sounding young girl’s voice screaming, “Pa, help me! Help me Pa, I’m blind. I can’t see!”

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Photo credit NBC

But we knew! We knew the minute we heard the voice of Melissa Sue Anderson, who portrayed Mary Ingalls on the popular show—the organist had hit only play rather than both record and play simultaneously.

Try to imagine a quiet, simple, mountain funeral suddenly and most unexpectedly, filled with the loud screams of a panicked young woman. You could see people mouthing the word, “Pa”—attempting in vain to discover who this “Pa” person was. Surprised and startled looks spurred my mother to jab Dad in the ribs, and he promptly pushed and shoved his way as gently as possible through the people obstructing his path to the organ.

As unobtrusively as possible, he pushed the “off” button on the tape recorder and weaved his way back to the front row of the church—only to find his oldest daughter hyperventilating and flapping her hands wildly, and his wife fixing him with her penetrating gaze.

“You turned it off,” my mother informed Dad. “Now it isn’t recording the funeral at all.”

The look on his face was a mixture of bewilderment, incredulity and hostility. I could literally see the gears of his mind churning in circles as he realized that Mom expected him to find a way back through the throng of mourners to turn the recorder back on—the correct way this time, in order to spare any further outbursts from Mary Ingalls. But he got up and did just that. And now you know the rest of the story.

Leaving a Kid (and part of your heart) at College

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So, it’s that time of year again. My Facebook feed is filled with posts and pictures of my dear friends leaving their kids at college. So much goes into that big day as any parent knows. I’ve been there and done that twice and it wasn’t easy either time. And endless loop of thoughts played through my head each time. Did I teach her/him enough? Does she/he know what to do in an emergency? What if she/he gets homesick but doesn’t call home?

My son has Asperger’s and we had to leave him at Georgia Tech in Atlanta. It was huge, busy, loud, and so terribly far from me. His mom. No one else knew him like me. But who was I to deny him his shot at this dream to go to Georgia Tech? Has it been easy? Heck no! That first year almost killed us both. But tomorrow he begins his junior year and he is still a Yellow Jacket through and through.

Flashback to 1986. What do you know? My mom felt the same way. She shared with me this journal entry that she wrote the day I started college. She gave me permission to include it in my blog.

I left her today.

So brave. So full of determination. 

She’s waited so long for this day.

It has been so long coming and there has been so much pain along the way.

But now.

She stands perched on the brink of her future.

Eager, and just a little bit afraid.

She’s a college student at last.

I have to admit I got a bit choked up when I read my mom’s words written about me. She knew me much better than I gave her credit for.

Here’s to fresh starts and new beginnings. To every college student and college parent out there tonight, just know that you’re not alone. You’re in good company. Go out there and knock ’em dead kids!

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photo credit for gif image. Odyssey Online

 

Saying Goodbye to My Sister

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My sister was older than me, so there’s never been a time in my life when she hasn’t been there. Until this past week. I’ve had plenty of time to reflect on her life and I want to take a minute to share some insights about what it’s like to live with a disability that makes you feel marginalized and even invisible.

Mary Beth was born in 1964 two months ahead of schedule. There were no neonatal intensive care units back then, so they just tried to keep her warm. She survived, but it was obvious by the time she started school that she had residual effects of her premature birth. Over the years I have watched her be cheated, robbed, beaten and worse. Thankfully most people in the world aren’t completely horrible and wouldn’t dream of doing things like that to a person with a disability. But there are plenty of decent people out there who just “didn’t see her.” And those are the people who can truly make a difference in the life of someone like Mary Beth.

On this day of her memorial service, I want to ask you for a favor. When you come across a person like my sister, take an extra moment to talk to her. Ask her about her hobbies. Ask her what TV shows she watches or books she reads. Ask her what kind of music she likes to listen to. And when she answers, just listen. Lately I’ve been replaying my last encounters with my sister and grading myself on how much effort I put into including her in conversations. And I don’t always score very highly. I’ve been wondering what it would feel like to sit there and listen to people talk about their careers, travel, kids, and other adventures when you don’t have those things. I’m so thankful for those people who invested their time and energy into her life.

On thing we can likely all agree on is that the world needs more kindness these days. This is one easy way to start spreading it around to those who need it the most.

Mary Beth, you were loved by so many people. You will be missed!

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